Laurence Tiennot-Herment honored for her commitment to fighting rare diseases
TIME France Health magazine recently published a profile dedicated to Laurence Tiennot-Herment, president of the AFM-Téléthon. This article highlights her personal journey and her long-standing commitment to the fight against rare genetic diseases.
Laurence Tiennot-Herment's story is deeply marked by the illness of her son, Charles-Henri. Faced with this ordeal, she chose to transform her pain into a collective strength by becoming actively involved with the French Muscular Dystrophy Association (AFM).
For several years, she has led the organization with determination, playing a key role in funding scientific research. Her work has enabled major breakthroughs in the field of gene therapy, thus offering new hope to families affected by serious pathologies.
This media recognition underscores the importance of the battle led by the association to improve the daily lives of patients. Through this portrait, the magazine salutes not only the courage of a mother, but also the effectiveness of a French associative model that has become a global reference in the health sector.