Patients Still Suffer Anemia and Fatigue Despite Existing Medication… Rare Disease Patient Group Calls for Fast-Track Listing of 'Voydeya'
Published
The patient association for paroxysmal nocturnal hemoglobinuria (PNH), a rare disease, is calling for the fast-track listing of the treatment 'Voydeya' under the national health insurance system. The association said that patients currently using existing treatments continue to experience symptoms such as anemia and fatigue.
PNH is a rare disease in which red blood cells in the blood are not maintained normally and are destroyed. The association explained that many patients are struggling with their daily lives even when treated with existing medications. It therefore argues that new drugs should be quickly covered by health insurance in order to broaden treatment options. Fast-track listing refers to speeding up the process of bringing a drug under health insurance coverage.
Related issues were also raised in the National Assembly. On the first day of the parliamentary audit by the National Assembly's Health and Welfare Committee, it was pointed out that the 'Regional, Essential, and Public Medical Care' (Jipilgong) policy, which the government has emphasized, is not actually felt in the field. 'Jipilgong' is an abbreviation for regional, essential, and public healthcare, and is a policy the government has pursued to reduce gaps in medical services.
This case illustrates whether patients with rare diseases can receive necessary treatment in a timely manner. Attention is focused on what position the government and relevant agencies will take regarding fast-track listing and the on-the-ground implementation of healthcare policy.
Sources: 코리아헬스로그
More South Korea news
- Digital TVET master's program launches in South Korea
- Gyeongbuk health group donates 100 boxes of grapes to children
- US Big Tech Pursues Multi-Trillion Won Investments in South Korean Data Centers Amid Uncertainty
- KB Insurance to Hold Open Recruitment for New Employees in Second Half of 2026
- Kolmar Korea Wins CES Beauty Tech Best Innovation Award for Second Straight Year, Setting World First
- China Closes In on Korea's Core LNG Carrier Market, Expanding from Mega-Vessels to Equipment
- China's Rapid Technological Development: South Korea Must Change Its Regulations and Labor System
- Ambassador Michelle Steel: American Companies Operating in Korea Should Compete in a Fair Environment